Thanks to better cancer treatments, more than 80% of children and adolescents in in Europe who get cancer will now survive more than 5 years. It’s estimated there are currently more than 500,000 survivors of childhood and adolescent cancer across Europe, and this number is growing. But cancer treatments are harsh and there are long-term affects that mean that survivors require closer health monitoring than the average population. There are clinical guidelines that tell healthcare professionals what care is needed, but it’s challenging to put them into practice in routine survivorship care. The digital Survivorship Passport (SurPass) can help!
PanCareSurPass is an EU-funded project looking at how to more widely implement the SurPass to improve survivorship care for survivors of childhood and adolescent cancer in Europe.
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[2024] Childhood Cancer Survivorship Passport Challenges in the European Health Data Space
Roberta Gazzarata et al, “Childhood Cancer Survivorship Passport Challenges in the European Health Data Space”, in Studies in Health Technology and Informatics, Volume 316, 2024: doi: 10.3233/SHTI240651
[2024] Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood
Davide Saraceno et al, “Assessment of HL7 FHIR Interoperability Between EHR Systems and the Survivorship Passport v2.0 Platform to Generate Treatment Summaries for Childhood Cancer Survivors in Six Clinics: Preliminary Testing Results”, in Digital Health and Informatics Innovations for Sustainable Health Care Systems, 2024, doi: 10.3233/SHTI240646.